Families upset as Muscular Dystrophy Association closes summer camps

Kara Marxer
February 06, 2018 - 6:37 am

Save Our Summer Camp campaign

Kansas City, MO - A Metro family is fighting to keep a little piece of heaven open for their daughter.

Last week, the Muscular Dystrophy Association announced it was shutting down the KC Metro and Missouri Area MDA camp and several others around the country. MDA said kids in the area would be able to go to another camp in southern Missouri. 
 

The Muscular Dystrophy Association is committed to offering the best camp experience for children and teens with muscular dystrophy and related neuromuscular diseases. After a comprehensive review, we did make some enhancements to our camp program in hopes of offering the most enriching experiences for each camper with updated programming and a focus on best-in-class facilities.

We are currently engaging with families and volunteers in the area, to ensure that we are addressing their concerns. Families with questions about our camp program can email or call Monica Meriwether at mmeriwether@mdausa.org or 314-962-0023. 

As always, MDA Summer Camps will continue to be provided at no cost to families. - MDA Statement from Monica Meriwether MDA Associate Director of Family Support & Clinical Care


The announcement was a blow to Walt Cochran, who says the alternative camp is not a good fit for kids like his daughter, Lindsay.

"There's a rock climbing wall and a ropes course and stuff like that," Walt said. "You've got a bunch of kids in wheelchairs, some that can walk, some that are wheelchair-bound, that was a hard one for parents to swallow."

About 100 kids attended MDA summer camps at Tall Oaks Conference Center in Leavenworth County. The closure will also affect about 100 staff members.

The closure was even harder on Lindsay. 

"It's one week of the year where I am made to feel normal, and not known for my disability, but known for me," Lindsay said.

Walt said he is going to fight for his daughter, so his family and others in the same siutation are starting an online campaign to raise $75,000 and create a nonprofit to save the MDA summer camp.

 

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